TTTS Update 01.16.18 – Amniopatch

One of my best friends called today for an update and I realized that I hadn’t really shared about tomorrow’s follow-up appointment and what it means exactly. When we left Lubbock last week, the plan was to go to Houston, get laser surgery, be completely healed, praise Jesus, and go home. When my waters broke just minutes after leaving the operating room last Tuesday, all of that changed.

When the MFM (baby specialist) came in to see what was going on, she scanned my belly and then quietly told Nate and me that we were losing both of our babies. I felt like my heart was being torn from my chest. Between the sobs I just heard myself saying, “No. That’s not fair.” Nate had no words.

We were taken into my room on the labor and delivery floor and tried to process what we had just been told. They were both dying. I could go into labor anytime. If I didn’t go into labor, I could get an infection and need to be induced to deliver my two babies to die. My head was spinning and I was no longer understanding much of anything. Every nurse and doctor we saw over the next few hours seemed to agree with what we had been told.

What Went Wrong?

Basically, when they went in for the TTTS laser ablation surgery, Eden’s membrane separated from the wall of my womb. This wasn’t a surprise because at 16 weeks membranes are just beginning to fuse to the walls. What was a surprise was that my water broke just twenty minutes or so after that surgery. This means I could go into labor anytime or risk life-threatening infection. If I get a fever, I’m headed to the hospital to have my babies taken out to save my life. If I go into labor, I’m headed to the hospital to deliver babies who will take a few breaths and pass away.

When we finally got to see the head doctor again, he seemed much more hopeful. Chances weren’t good that they would live, but both Eden and Everly were stable and that gave us a chance. He offered us an experimental treatment called an amniopatch. Basically, the amniopatch is a procedure that tries to seal the torn membrane and prevent premature delivery as a result of the ruptured membrane. The procedure inserts clotting substances inside the amniotic cavity (bag of waters). The hope is that the clotting substances then seals the hole in the membrane. It’s basically like patching a flat tire. Our doctor had only preformed two other amniopatches in his entire career with one working and one not. Since the procedural risk was relatively low to myself and the babies, we agreed.

Where We’re At Now

Tomorrow we have an appointment with my MFM in Lubbock to see if the amniopatch worked.

If the amniopatch did not work, then we know Eden will not live. She will continue to grow, but because there will never be fluid around her she will never have the time to develop her lungs. She’ll be born, take a few breaths, fall asleep, and wake in the arms of her Heavenly Father. Also, if the patch is unsuccessful, Everly will only have a 50% chance of surviving. We will still be fighting infection, preterm labor, and her just passing away. I will be on complete bed rest and, if I make it to 24 weeks, I will then be admitted to the hospital for weeks or months until she’s born.

If the amniopatch does work there’s an almost 100% chance (barring further complications) that both will live and I will carry till 35 weeks. Incredible. I may or may not have bed rest in this scenario.

Prayer Requests

  1. That the amniopatch worked!
  2. That we would have peace tonight as we wait.


10 Responses to TTTS Update 01.16.18 – Amniopatch

  1. Allison Lupo says:

    Hannah, I just discovered your blog after clicking the link on Karen’s FB page post. There are no words to express how sorry I am that you and Nate are having to go thru this. I prayed last night and this morning that you receive good news today. Thinking of all of you! Love, Ali (your mom’s cousin)

    • Hannah says:

      Thank you so much for the prayers. I’m sure you saw the good news Wednesday. We still have a long, uphill battles, but our doctor called it a miracle. God has carried us this far and will continue to do so. Thanks for the dinner gift card! Nate and I love that place.

  2. Kim Salazar says:

    I heard Dr David Jeremiah’s sermon this morning. He said, “God causes the circumstance in order to create the need.” That is where we demonstrate our faith in His plan. My prayers and thoughts are still with you. Vaya con Dios❣

    • Hannah says:

      Thank you for sharing. Trails certainly do deepen our faith in Him as we watch him work. Thank you for the prayers!

  3. Sarah Winton says:

    Thank you so much for the update-praying for you & your husband, and your sweet babies!

  4. Colleen says:

    Hannah… this too is hard for me to hear your story. I want to fix it. But I know as well as you that our God has so much understanding and peace that I could never give. I pray you hear his voice Loud and know with out a doubt what your next decision is. That you and Nate relationship deepens within this time and you are loved by so many Hannah. Colleen

    • Hannah says:

      Thank you for your care and love. I know if He gave us this burden, He will also give us that grace and strength to walk through it. And thank you for the prayers. Nate and I have needed to really work to keep connecting with each other. We are both so emotionally drained that we don’t have that extra that marriage takes. It’s been hard, but we know God will work in that area too.

  5. Elisabeth says:

    Praying for you, your husband and you thee little darlings! Having just been blessed with the safe arrival of our second baby girl, sixth baby, after an emergency c-section, your story grips at my heart! But I am confident that our good Heavenly Father will see you through every step of the way, just as he did for us and all who trust in Him.
    -a sister in Christ

    • Hannah says:

      Thank you so much for the prayers.

      Congrats! Six littles is just amazing! What sweet little treasures.

      He certainly will see us through. I’m glad y’all made it through that C-section. I’m sure that was scary.